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Kerala- first to issue Brain Dead certification guidelines



Brain Dead

The Kerala government issued guidelines on Saturday to take a decision on Brain Dead cases. Kerala has become the first state to adopt Standard Operating Procedure in such cases. The rules implemented will apply to both government and private hospitals.

In fact, for a long time, brain death and organ donation was such a serious discussion between peoples. Health Minister K.K. Selja said that the patient will be called brain dead when there is no possibility of survival. There are several scientific procedures that will be followed to confirm brain death.

Process to declare Brain Dead

According to the rules, a medical board of four doctors will declare a patient dead. There will also be a government doctor in this board. These rules are divided into three phases. Precautions should be taken before the tests to confirm brain death, must see the process of brain, sleep test must also be done.

The rules also explain the difference between brain death and coma. According to this, coma is the state, when the specific nerves of the brain become unconscious due to damage. Brain cells are permanently destroyed due to excessive bleeding in brain death.

Sleep test must be done twice

According to the rules, if the patient has to be kept at the ventilator side in coma stage then the possibility of brain to be dead can increase. For confirmation of brain death, the team has to do a sleep test twice. There will be a gap of 6 hours between the two. This will make it clear that in the future the patient can breathe himself or not.

If the legal or scientific probability of breathing is very low, then it can be declared a brain dead. With this, the process of organ donation can also be started on receipt of consent from the family. All these have to be recorded on Form 10 of Transplantation and Tissue Rules 2014 and on this form four doctors will have to sign.


Rare genetic brain disease reported, ‘Myoclonus-Dystonia’




Bangalore: A rare genetic brain disease causing a movement disorder has been reported from Mumbai where a 21-year-old patient has been diagnosed with ‘Myoclonus-Dystonia’ with facial, neck and hand shaking and jerking due to rare genetic disorder called ADCY5-related dyskinesia.

This is a rare disease with less than 400 cases reported all over the world. The disorder is known to cause abnormal involuntary tremors in the body and is usually seen in children, but this is the first time it has been reported in an Indian adult patient.

He suffered from the condition since he was 13, but these jerks were initially mild. This progressed to moderate severity over the last few years. “We were able to manage the trembling till the time they were mild. With time, the intensity increased and so did the frequency which hampered daily activities and even any work that needed concentration”, told the parents of the 21 year old.

Dr VL Ramprasad, COO, MedGenome Labs that performed the genetic testing said, “ADCY5 mutation causes abnormal involuntary movements affecting the neck, arms and face. This mutation can also lead to episodic worsening triggered by anxiety, stress or inactivity -or characteristically periods before or after sleep. We have now published this case in MDCP (Movement Disorders Clinical Practice), which is a well-known journal.”

The doctor informed that when the patient came to them he would get these movements in spells intermittently in the early years. His whole body was shaking when he was anxious or even concentrating on an activity. After initial tests the doctors were convinced that he had a rare genetic disorder and tests confirmed ADCY5 gene mutation

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